Wednesday, February 14, 2007
The operation and the bird cage
To explain the name of the blog "Isolation Mask" I have to tell the back story of my current conundrum. In October of '06 I went to the school medical department because I had not been able to sleep in two day suffering from chest pains. Poke me, stick me, take my pee the doctor tells me that I have kidney failure (BP 192/112 and creatinin of 5.5). My family doctor confirms it the next day and I'm stuck in a hospital for 4 days. Finally my blood pressure under control, they take a kidney biopsy (drink a lot of water immediately before a biopsy to pee out the blood clot or you will feel pain like nothing else). So I'm out of the hospital taking 80 mg of Prednisone (steroid ) which is almost a poison. No reaction at all which isn't a good sign. biopsy comes back and it confirms what was suspected IgA Nephropathy. Which in fact is not a problem with kidneys at all but an immune problem (Immuno globual A) Nephropathy just means killing cells. (First realization of my mortality at age 23) I play yo-yo with my blood pressure for 3 full months with the medication I'm taking (its like checkers, and very easy to control, just one thing is that if I loose a game I die. (Second realization of my mortality) On January 10 of '07 I get a LRD transplant (living related donner) from my mom. I spend two days in ICU and have a great time either talking to people (saying the exact same stuff), watching the clock tick, or sleeping. Another 4 days in a regular room where liquid is just pumped into me constantly and I have a colostomy bag for urine and after its removal realize that anything other then urine in the bladder will cause excruciating pain, even air. The staples run from my left side to about an inch bellow my belly button. (First realization of a different life) So finally out of the hospital I will have to take medication for the rest of my unnatural life because at this point modern medicine can allow an organ transplant but not prevent rejection with out immune suppressants. so I take about 11 pills in the morning and night. (I form my third realization of my mortality at this point) I'm stuck at home until my curfew is over because I can't get sick.
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